Rare disease uk
1 in 17 people will be affected by a rare disease at some point in their life.
This amounts to approximately 3.5 million people in the UK.
75% of rare diseases affect children and 30% of rare disease patients will die before their 5th birthday.
There are over 6,000 recognised rare diseases.
Collectively rare diseases are not rare.
Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.